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The Inclusion Movement

The Inclusion Movement campaigning for human rights must recognise the education of Disabled people as a human right. They must find a way of recognising the needs of Disabled children, Young people and their families – to take control of specific requirements for our impairments. Developing notions of self-worth, mutual-worth, empowerment and agency are crucial. At the same time we must continue to work to create an environment which accepts and welcomes difference, by removing notions of normality (with their eugenicist foundations, stereotypes and stigma) and challenging all forms of bullying.

Impact of COVID-19

The tendency to ration medical support via triaging or encouraging ‘do not resuscitate’ statements for Disabled people is evident in the current COVID-19 pandemic. This uncovers the tip of an iceberg of moral and ethical judgements based on medical model thinking and not on the human rights principles of equal treatment, regardless of impairment, espoused on the surface. During this pandemic Disabled people have been widely ignored across UK Government departments. COVID-19 has revealed the extent of the difficulties and struggles of Disabled children in accessing education as well as learning support, creating inequality for them within the education system.

We spoke with Akosua Amoteng from Waltham Forest, a parent to 13-year old son who attends a mainstream school. Her son has learning difficulties and is ventilator dependent. Akosua stated:

“my son is shielding, and we [parents] support him with his schoolwork and medical needs at home.”

She also shared examples about the types of support the school is currently providing for home schooling. This includes lessons sent by e-mail, weekly phone calls to find out how he is coping and google sessions online. There didn’t appear to be any differentiation of the educational material issued to her son and the family are having to provide the support. Akosua has further worries about her son’s safety to return to school and said she wants to:

“know what measures will be put in place to keep him safe”

because she will not put her son at risk of getting virus (COVID-19). Akosua continued to speak about the support provided by the school when her son transited from primary to secondary school. She describes this as:

“a tough experience because there was a change to his TA [Teaching Assistant] and challenges with his behaviour”.

Unfortunately, there seems to be a disconnect between primary and secondary school in the process to ensure the continuation of the same type of support. Akosua felt that the experiences affected her son’s settlement in Secondary school- the new arrangements for Akosua’s son was not to:

“have one-to-one TA but to have access to a team of different TAs and this was hard for my son to adjust to”.

She also spoke a (little) bit about her son’s painful experience in developing relationships with other peers and making friends at school.

Austerity

The current pandemic has created further barriers for Disabled people which further exasperated the ten years of austerity and forty years of neo-liberal, free market-based capitalism have left our public services hollowed out. Our hospitals, social care, environmental health, benefits and social housing are under-invested. Important rational decisions for the public good were not taken, reducing the UK’s capacity to deal with not only the pandemic but a myriad of issues including public health.

Child and Adolescent Mental Health Services (CAMHS) are another example of the pressures put on young people. The austerity and education reforms have ratcheted up the levels of mental health issues. These services have been reduced and inevitably rationed. Specialist CAMHS are NHS mental health services that focus on the needs of children and young people can provide really useful support . They’re multidisciplinary teams often consisting of: psychiatrists, psychologists, social workers, nurses, support workers, occupational therapists, psychological therapists – this may include child psychotherapists, family psychotherapists, play and creative art therapists, primary mental health link workers and specialist substance misuse workers. One in ten children between the ages of five and sixteen have a clinically diagnosable mental problem, and many go into adulthood with serious unresolved problems. Indeed 50% of mental health problems in adults were identifiable by the age of 14.[1]

Government funding

A Survey by Young Minds[2]in 2016 revealed the government had invested an extra £1.4 billion up until 2020, in order to “transform” CAMHS in line with the recommendations of the 2015 Future in Mind report. Despite huge public concern about children’s mental health, CAMHS currently account for just 0.7% of NHS spending, and around 6.4% of mental health spending. Research into the responses of 199 Clinical Commissioning Groups (CCGs) from Freedom of Information requests has revealed that:

The 2014 Children and Families Act introduced a new joined up way of holistically meeting Educational, Health and Care Needs. Some of us had been trying to get joined up support for Disabled children and young people since 1997. It was evident the under-funded and hard-pressed health service would not be able to properly support children’s medical needs. In May 2016 the two inspectorates, Ofsted and the Care Quality Commission (CQC), started a new type of joint inspection. The aim is to hold Local Areas to account and champion the rights of children and young people.

The report ‘What is the Outcome?’[3] revealed some disturbing findings from the 131 Local Areas inspections completed, 63 have to reply to a Written Statement of Actions, (+5 more DfE are to determine). In other words, they are not carrying out the basics required by the Children’s Act Part 3. One of the key weaknesses identified was ‘poor relations with parents, a poor local offer, lack of joined up working especially with health and weak diagnosis pathways.’ These experiences were before the Coronavirus lockdown. However, there is a removal of legal rights for an EHCP by the Coronavirus Act 2020 which has now been replaced by Local Authority ‘best endeavours’.

It is not just referral and support from CAMHS that is in short supply. Speech and language therapists, physiotherapists and occupational therapists are usually supplied by a service contract between the Local Authority and the NHS. These provide services up to an age cut-off to both mainstream and special schools and are therefore in short supply. A way of spreading the scarce resource is the ‘Consultancy Model’ where a clinically trained practitioner assesses and reviews the needs of the child and then develops a programme which the Teaching Assistant delivers. This can work but it needs to be integrated into the curriculum and school day and reviewed regularly. Independent special schools increasingly offer direct therapy and an on-site team of multi-disciplinary therapists, which leads to an increasing number of parents seeking these placements at Tribunal – at great cost to the Local Authorities (LA). The answer is for LAs to increase the provision in their schools for therapies where needed. This will require an increase in the Higher Needs Budget for LAs.

Austerity was previously used as the reason to cap this, however it is now clear it’s about the lack of political will for the inclusion of Disabled children.

The ask

The 2014 Act only provided legal redress to education protection neglecting Care and Health issues. The DfE set up a pilot in 2018 for SENDIST Tribunal to rule on Care and Health provision. They have dealt with more than 1500[4] The 2014 Act only provided legal redress to education protection, neglecting Care and Health issues. The DfE set up a pilot in 2018 for SENDIST Tribunal to rule on Care and Health provision. They have dealt with more than 1500 cases and unofficial feedback is overwhelmingly positive, as the trial has provided increased accountability for Care and Health Agencies. The Government has recently agreed the National Trial will be extended to August 2021. Lodge cases with SENDIST if you are not getting justice in the provision for Education, Health or Care for your child or young person up to 25.

We know that inclusive education has not been regarded as a priority issue the SEND system or in the UK Disabled People’s Movement. The social model/human rights model rightly puts the focus on society to address the historically rooted and still dominant oppression of disabilism we face. This often prevents us from talking about and reclaiming the means of managing our impairments. The long and growing attachment to special educational needs, often sought by parents and encouraged by professionals, and existing legal framework (SEND), is a reaction to this unresolved contradiction.

Richard Rieser & Michelle Daley
Directors, World of Inclusion & ALLFIE

References

[1] www.theguardian.com/commentisfree/2018/feb/27/mental-health-cuts-children-young-people

[2] https://youngminds.org.uk/media/1285/foi-2016-press-release.pdf

[3]https://adcs.org.uk/inspection/article/send-inspection-outcomes-summary

[4] www.senexpertsolicitors.co.uk/site/news/send-tribunal-national-trial-what-you-need-to-know

I conducted this interview for the Faculty of Education’s journal, Malta Review Educational Research, special edition on ‘Inclusive Education: Listening to the Disabled Students’ Voices.’ Revisiting the interview I conducted with Profs Salvatore Soresi and Laura Nota, from the University of Padova, after the appearance of COVID-19, further engages me with the essence of our work; promoting environments for inclusive education. COVID-19 has magnified the inequalities in our educational systems laying bare the marginalisation of many students, especially disabled students.

The following words sum up Profs. Salvatore Soresi and Laura Nota’s work as they continue to stress on the development of “the skills needed to identify diversity, to respect and celebrate it”. These skills can be learnt. They see “Diversity”, in its broadest sense, as being “part and parcel of life”.

For Soresi “Inclusion just does not happen on its own. It is up to us to create the right contexts” (page 169) and teach the necessary skills for us to be able to include each other.” There are no short cuts to inclusion. Cutting corners may easily lead us straight into segregating environments thinking they are the only way forward, as they lose hope and optimism.

Briefly, three themes can be identified in their interview:

  1. The first highlights the notion that the success of inclusive education depends on “The Other”. The necessary conditions for inclusive practices are creates for inclusion to exist and flourish;
  2. Secondly Soresi and Nota focus on the peers’ awareness and acceptance of diversity, in all its forms and shades;
  3. Thirdly they focus on developing positive attitudes like hope and optimism, concepts borrowed from Positive Psychology.

Who are “the others”? The success for inclusive education depends on many stakeholders: the teachers, the support staff, the school management team, parents, other professionals, the Unions, policy makers and, above all, ALL the students.

To create inclusive scenarios, Nota states that we need to focus on:

  1. “The engagement of all who work at school” to create that ‘inclusive culture’ which one breathes at every corner of the school;
  2. The engagement of all the parents;
  3. The engagement of classmates, so that they may learn how to manifest pro-social behaviour (acceptance, support, and solidarity) in their relationships.

The “engagement of class-mates” through the Peer Preparation Programmes (PPPs) is pivotal to their work. Soresi has advocated these programmes since the late 80’s creating a space for “students’ voices”. The early PPPs focused primarily on the inclusion of disabled students while those developed recently deal with diversity in its totality. According to Soresi “it makes no sense to talk about the inclusion of certain categories of people, for example disabled people, persons with mental health problems, immigrants and so on….this would have been valid when we used to speak of mainstreaming and of integration” (page 165).

Today we need to defend the achievements gained and protect those “conditions which characterise” the inclusive context. These conditions need to be safeguarded as basic human rights. Soresi is categorical here. A context cannot be inclusive for one category of people and not for another. “A context, in our opinion, either is or is not inclusive and it cannot demand any conditions for membership. (We like to say….inclusion with no ifs and no buts)” (page 165). Nobody has to prove to anyone else their right to membership. We strive to include all children in heterogenous classrooms

It is this engagement of heterogeneous groups of classmates that the peer preparation programmes address. Today the schools’ contexts reflect a “high level of heterogeneity and a plurality of situations”. Belonging to such classrooms benefits everyone. Children miss out when they are categorised according to gender, bands, levels, abilities, language, special needs etc.

Soresi and Nota contend that if one wants to strive towards an inclusive school where, everyone belongs with “no ifs and buts”, we need to identify and remove those “barriers and obstacles that still present risks of exclusion and discrimination, especially for persons who are particularly vulnerable notwithstanding the existence of policy declarations and current legislation” (page 166). We are, indeed, well aware what these “negative and penalising phenomena are”; “permanent and affirmative” “counter-measures have to be put in place” which deal with “the teaching and the education of all involved” in “how to act respecting diversity, inclusivity and solidarity … to combat injustices”(page 167).

It is in these heterogenous classrooms that children grow in respect, creating a “micro-reality and a laboratory of solidarity, pluralism, and compassion” (page 167). “Inclusion” does not happen on its own it “requires intentionality, investment in human resources and continuous care” (page 167). We need to ask to what extent have vulnerable children been included during this pandemic in online sessions, been in contact with their peers, attended visual contact with their educators? I would expect that the answers to these questions would depend on how included all educators, parents and peers are in the first place. This is certainly a topic, which needs to be researched. Are there differences in those schools, which implemented programmes like ‘Positive Actions’ (Le Belle Azioni) and ‘Hurray to Differences, Hurray to Participation’ in the students’ level of participation specifically during this pandemic? Did those participating in the training programmes develop: greater awareness about diversity; reduce negative stereotyped attitudes and acquire more refined interpersonal relationship skills, promote pro-social skills and “favour positive and hopeful attitudes when faced with problems and difficulties”? (page 167)

In the third and final core theme Nota explores the development of positive attitudes like hope and optimism, since these positive attitudes are involved when dealing with diversity and pro-social behaviour towards other. It is these positive attitudes that we need to develop in our students and ourselves. Here she introduces the workshop “Jujube of Optimism and Hope at school” (Nota, Di Maggio, Santilli, & Ginevra, 2014): “This workshop proposes to analyse, together with the children, the idea of optimism and hope, stressing the importance of certain strategies and ways of thinking and developing children who are optimistic and hopeful” (page 169). Jujube (Giuggiole in Italian and Ġuġu in Maltese) are colourful gummy sweats, which children love. The children are taught to identify positive thoughts, and characteristics associated with hope and optimism as opposed to negative thoughts and characteristics. This helps the children “formulate positive objectives for their own future, showing also the strategies they need to achieve them” (page 169).

There is no quick fix for inclusive education. We are in the business of developing relationships creating an environment where all children, teachers, other educators, and parents feel that they belong. This needs time. It needs nurturing and continuity to develop security, participation, hope and optimism and a sense of belonging. We need to identify and eliminate any systemic barriers to inclusion which favour segregating practices and introduce inclusive methodologies and positive attitudes on a whole school approach.

Soresi and Nota are masters in this and I thank them once again for continuing to generously share their innovative insights on how children may be prepared to become empowered and self-determined making their voices heard in an inclusive participatory environment.

The whole interview may be viewed here: www.mreronline.org/wp-content/uploads/2017/12/2-Elena-Tanti-Burlo%CC%80.pdf

Dr Elena Tanti Burlo, University of Malta

Selected References

Asante, S. (2002). What is inclusion?. Toronto: Inclusion Press. Banks, J. A. (2009). Diversity and citizenship education in multicultural nations. Multicultural Education Review, 1(1), 1-28.

Nota, L., Di Maggio, I., Santilli, S., & Ginevra, M. C. (2013). Nuggets of optimism and hope at school: A laboratory for middle school students.

Nota, L., Santilli, S., Soresi, S., & Ginevra, M. C. (2014). Employer attitudes towards the work inclusion of people with disability. Journal of Applied Research in Intellectual Disabilities. 27(6), 511-520.

Nota, L., Soresi, S., & Ferrari, L. (2014). What are emerging trends and perspectives on inclusive schools in Italy. In J. McLeskey, N.L. Waldron, F. Spooner, & B. Algozzine, (Eds.) Handbook of EFFECTIVE inclusive schools. Research and practice (521-534). London: Routledge Publishers.

Soresi, S., Nota, L., & Ferrari, L. (2006). Family setting in Down syndrome. In J. A. Rondal & J. Perera (Eds.), Down syndrome, neurobehavioral specificity (191-211). Chichester: Wiley. S

Soresi, S., Nota, L., Ferrari, L., Sgaramella T. M., Ginevra, M. C., & Santilli, S. (2013). Inclusion in Italy: From numbers to ideas… that is from “special” visions to the promotion of inclusion for all persons. Life Span and Disability, XVI(2), 187-217.

Inclusive Education in Malta

The National School Support Service of the Ministry of Education and Employment, Malta took exception to the article on Inclusive Education in Malta in the last issue of Inclusion Now (No.55). Richard Rieser, the author accepts he should not have identified an individual pupil and apologises for this. However, his article was written from his personal perspective and expertise and was drawing on talks with inclusive education experts in Malta, 40 LSEs, staff at the school visited and some parents of disabled children. He also had a briefing from the National School Support Services who have criticised the article. This magazine goes by the UNCRPD definition of Inclusive Education, but we welcome dialogue.

The Local Authority are ordinarily under an absolute duty to secure special educational provision and health care provision in accordance with an Education, Health and Care Plan (EHCP). In light of the Coronavirus Act 2020 Modification of section 42 of the Children and Families Act 2014 (England) Notice 2020, this duty has been relaxed to one of ‘reasonable endeavours.’

This means that any duty imposed on the Local Authority is to be treated as discharged if they have used reasonable efforts to put provision in place during the period specified in this notice.

This notice is in force until at least 1 July 2020. However, the Secretary of State may extend this further but as of 16 June (at the time of drafting), there has been no indication that this notice will be extended or otherwise. The Secretary of State for Education has been threatened with legal action over the notice but is reported to be defending the action.

Although this situation is subject to change given the fast moving nature of things, whilst this notice is in force, the Local Authority are only under a duty to ‘try’ and secure the provision in accordance with your son’s EHCP but there is nothing in law to say they must do so. As soon as the notice expires, the duty to secure provision in plan is more definite. However, whether or not the notice is in force, there is a duty on both the Local Authority and the school to ensure that children remain safe.

We do not know how long the shielding of vulnerable individuals will be considered necessary and nor do we know if and when a vaccine will be available to protect people against COVID. This means that the Local Authority and the school should be considering reasonable alternatives for your son whilst he is shielding. This may mean that it is necessary to deliver provision different (or in a different way) to what is specified in his plan but they should essentially try and get as close as possible whilst maintaining your son’s safety.

Examples of this may include the provision of resources to allow you to effectively home educate your son, ensuring that appropriate PPE is provided to therapists who may, at some point, be able to make direct contact with your son or for your son’s therapists to draft individual programmes and/or strategies for you to implement at home. Exactly what is appropriate is going to depend on your son’s specific needs and will be different for different children but it is important that local authorities and schools work together to establish what can be achieved safely whilst this situation continues.

If families find themselves in difficult situations like these then they can seek legal advice on their individual circumstances. It is important to remember that the law and the guidance is changing regularly and up to date advice on your specific circumstances will always be beneficial.

Lydia Neill

Lydia is a Paralegal in the Public Law Team at www.simpsonmillar.co.uk

Welcome to the 56th edition of Inclusion Now. Audio and text versions are in the articles below (screen reader accessible) or you can read it in magazine format on Issuu (not screen reader friendly).

To receive three issues of Inclusion Now a year on publication date, you can subscribe here. Subscribing supports our work and helps us plan for the future.

Inclusion Now is produced in collaboration with World of Inclusion and Inclusive Solutions

Inclusion Matters to ALLFIE: In Solidarity with Black Lives Matter Movement

Read ALLFIE’s statement in solidarity with Black Lives Matter Movement and view our new video series: Voices of Disabled Black Campaigners

The horrific killing of George Floyd in America has resulted in global mass protests calling institutions out about the deep level of racial injustice and intersectional oppression, and demanding for radical change.

ALLFIE stands in solidarity with Black Lives Matter movement to condemn all forms of violence, abuse, injustice and demand everyone has a right to be respected and free from discrimination.

Reports have shown that the education system has disproportionately failed disabled black children and young people in the UK. The 2019 Timpson review on school exclusion reported that a Disabled Black boy from a under-resourced background with an Education, Health and Care plan has 58% chance of being excluded from school:

“Children need to be valued and the education system needs to be inclusive of all and we have seen some changes that have happened to disabled people and disabled children, but not for black disabled children” (Saádia Neilson)

We are committed to continuing our work to ensure we are not mutually exclusive in our work and don’t view ‘disability’ as a single issue. We know that:

“there is no thing as a single-issue struggle because we do not live single-issue lives.” (Audre Lorde)

This is why ALLFIE has produced a video series with Disabled Black campaigners because we want to show solidarity to Black Lives Matter movement but also recognise the voices and contributions of Disabled Black People to our campaign for human rights:

Black Lives Matter | Voices of Disabled Black Campaigners 1

Black Lives Matter | Voices of Disabled Black Campaigners 2

Black Lives Matter | Voices of Disabled Black Campaigners 3

Black Lives Matter | Voices of Disabled Black Campaigners 4

Black Lives Matter | Voices of Disabled Black Campaigners 5

Inclusion matters to us this is why we must educate, don’t segregate.

In solidarity and unity

Our June briefing on the impact of Covid-19 on Disabled learners covers:

For more information on Coronavirus and Disabled people’s education, please see our previous monthly briefings:

Covid-19 Legal Update

The Secretary of State for Education has announced that the notice allowing local authorities to use their ‘reasonable endeavours’ to secure special educational needs provision for Disabled students will continue until the end of June.

For more information about emergency modifications to the Children and Families Act 2014 affecting Disabled learners and Education, Health and Care Plans, please read our previous briefing: Coronavirus and Inclusive Education.

Department for Education Guidance: Schools re-opening

Now that the Government has started to permit schools to reopen for a limited number of pupils, there has been updated guidance published by the Department for Education.

Similarly, as the Government has started to permit further education institutions to reopen for a limited number of pupils, the Department for Education has published applicable guidance.

Guidance has also been published supporting children and young people with SEND as schools and colleges prepare for wider opening.

ALLFIE’s position

The Alliance for Inclusive Education does not hold a position on whether individual schools and colleges should open and whether individual children will be safe returning to the classroom. We recognise that every family must make that decision for themselves by considering the whole range of risks that Covid-19 presents to their individual children, other family members and the wider community.

However, ALLFIE still remains very firm that disabled children have the right to access mainstream education whether that is taking place in schools, their own homes or anywhere else. All disabled children and young people have a right to receive the special educational needs provision they require, even if that is provided in an alternative format within their own homes. Moreover, where remote learning is not working for disabled students we will continue to highlight the need for schools to work with families to develop alternative educational activities.

What you can do: Have your say

We would welcome reports of Disabled peoples’ education experiences throughout the pandemic in various formats, from children, young people or parents, to inform ALLFIE’s continued work during and post Covid-19.

In the first instance, please contact Simone Aspis at simone.aspis@allfie.org.uk

In solidarity

The Alliance for Inclusive Education has made the following submission to the Children’s Commissioner for England, in response to work being undertaken around the disadvantages that Disabled children and families are experiencing since the Covid-19 outbreak.

ALLFIE’s submission to the Children’s Commissioner: The impact of Covid-19 reforms and school closures for Disabled children and their families

June 2020

The Alliance for Inclusive Education (ALLFIE) is the only national organisation led by disabled people working on educational issues and, in particular, working to promote the right of disabled students (including those with SEND) to be included in mainstream education, as set out in Article 24 of the UN’s Convention on the Rights of Persons With Disabilities (UNCRPD).[i]

ALLFIE uses the term ‘disabled children and young people’ because many will fall under the definition of disabled persons in the Equality Act 2010.[ii]

Covid-19 and Disabled people’s equality in mainstream education

ALLFIE welcomes the Children’s Commissioner’s inquiry into the impact of the Covid-19 pandemic on disabled children and their families. We are deeply concerned that the Covid-19 pandemic will deepen pre-existing inequalities between disabled and non-disabled people by exposing the extent of ableism within the state education system.

There has been research into the implications of the Covid-19 crisis for educational inequality between children from different socioeconomic groups.[iii] There has been no similar research into exposing the impact of the Covid-19 outbreak upon disabled students, many of them without ANY special educational needs provision or disability-related reasonable adjustments, in addition to having no education for a prolonged period of time, as this educational professional observes:

“I am SLCN-based within a mainstream junior school. My pupils are not in school and some are struggling to access online learning opportunities. [I am] concerned that [the] existing gap will widen further and that pupils will need an extended period of readjustment on [their] return to school.” (ALLFIE Education Professional Survey, April 2020)

ALLFIE is concerned that disabled pupils are a low priority for the Department for Education and the Government. So far, the Government has done nothing to respond to the growing number of disabled pupils we are coming across that are being denied access to mainstream education despite the law being in place.

The Covid-19 pandemic does not allow the Government to set aside their obligations under both UNCRPD’s Article 24 and Comment 4 to promote and develop inclusive education practices. Similarly, the emergency legislation does not allow either local authorities or education institutions to put aside their duties, as outlined in the Children and Families Act 2014[iv] and Equality Act 2010, around the presumption of mainstream education and the requirement to make disability-related reasonable adjustments for disabled pupils participating in mainstream courses.

Secretary of State for Education’s notice to modify the Children and Families Act 2014 provisions announcement on 30th April 2020

Before the pandemic, the operation of the Children and Families Act 2014 failed to properly work for disabled children and young people. The Government‘s Coronavirus Act 2020[v] notice to modify the Children and Families Act s(42) so that local authorities are only required to use reasonable endeavour to secure the SEND provision specified in the child’s education, health, and care plan (EHCP) from 1st May has been a disaster for many families; it has meant that their disabled children are left unable to participate in online learning platforms and without any form of education for months despite local authorities and schools still having staff on the payroll.

Furthermore, the Government has failed to undertake an equality impact assessment of the Secretary of State for Education’s notice, SEND, and general health and safety guidance, including social distancing, and its influence on providing education for disabled pupils under the Equality Act’s Public Sector Equality Duty during the closure of education institutions. There is a requirement for public bodies to assess the impact of policies and decisions on people with protected characteristics. We have not seen any evidence of this being done in relation to disabled pupils or their families.

The UNCRPD Monitoring Committee has published guidance on Covid-19 and the Rights of Persons with Disabilities.[vi] In the preamble to the section around education, it states:

“To reduce the impact of disruption in education, some States are adopting remote learning practices. In these cases, however, students with disabilities are facing barriers on account of the absence of required equipment, access to internet, accessible materials and support necessary to permit them to follow online school programs. As a result, many students with disabilities are being left behind, particularly students with intellectual disabilities.”

Disabled pupils’ SEND provision

Since education institutions closed, the failure to provide any form of education or secure any form of SEND provision for disabled pupils has worsened substantially.

ALLFIE has surveyed its members and invited Facebook posts to enlist disabled school and university pupils, parents, and educational professionals’ experiences of the provision of education services throughout the Covid-19 pandemic. Since schools and colleges closed, we have found that:

The Family Fund have published findings stating that 74% and 71% of parents reported that their biggest concern was their disabled child’s education and emotional well-being, respectively. In the same survey 75% of disabled pupils were no longer receiving any education psychology, occupational therapy, speech and language, and physiotherapy input, which are vital for enabling children’s education to continue during the Covid-19 outbreak.[vii]

The Government’s Covid-19 SEND guidance emphasises the need for local authorities and education providers to arrange special education needs provision and disability-related reasonable adjustments in a flexible manner, which includes offering services in different ways such as arranging speech and language and occupational therapy online using Zoom or another form of video linking facility. In addition to considering remote learning, the guidance makes it very clear that where necessary in-person services should be arranged for disabled students so they can continue with their education at home. Since the closure of schools and colleges, parents have said:

One of [the SENCO’s] comments was to tell him he didn’t need to do the work set but this doesn’t address his right to learn. There has been no mention of our son’s EHCP since his mainstream primary school closed. He has muscular dystrophy and problems with handwriting, holding reading posture, etc.” (ALLFIE’s Parent Survey, April 2020)

“There’s a shocking lack of offer of support… There was no offer from [the child’s] school or local authority. Speech and Language Therapy as part of his mainstream SEND unit provision, nothing, just got a call from [the therapist] the week of lockdown advising me to encourage appropriate language!!..” (One parent posting on Facebook, April 2020)

The evidence from ALLFIE’s survey of disabled students faces similar difficulties in arranging the necessary support in the form of reasonable adjustments by their education institutions.

[There has been] no specific help from college so I need help from my [personal assistant] at home to access work, etc.” (ALLFIE’s Disabled Students Survey, April 2020)

Approximately 66% of health employees are in teams where some had been redeployed; this has affected the provision of advice regarding specific children or the whole school and direct contact work. We are being told that disability support staff such as speech and language therapists, occupational therapists, learning support assistants, and learning mentors are either being redeployed elsewhere or furloughed when they should still be working with their disabled pupils whilst continuing with their home-based education. The guidance includes the redeployment of staff from one educational setting to another to cover staff with Covid-19 itself or Covid-19 symptoms so that some schools can remain open. We never expected that dedicated staff working with disabled children and young people could be moved to work in administrative and healthcare assistant roles within hospital settings; this is simply unacceptable.

Remote education

There has been published research into the impact that remote education is having upon children and families from a low socioeconomic status. Issues such as computer equipment, quality of broadband connection and learning environment, and parental availability to support their children’s education have been investigated and reported on by independent research organisations. As a result, the Government have started to address the lack of remote learning facilities for families from financially disadvantaged backgrounds by offering targeted support. There has been no similar investigation into the impact that remote education is having on disabled children and their families, nor into any specific targeted assistance.

We have identified a range of issues affecting disabled children and their families since schools have moved their education offer to remote learning.

Disabled people and digital inclusion

Across all age groups, disabled adults make up a large proportion of adult internet non-users. In 2017, 56% of adult internet non-users were disabled. For internet non-users aged between 16 and 24 years, 60% were disabled in 2017.[viii] Many health conditions and impairments are inherited, so children will often share similar impairments or health conditions with their parents. It would therefore be reasonable to expect that disabled children will make up a large proportion of internet non-users.

Computer equipment

Unlike children from financially disadvantaged backgrounds, there appears to be no Government support from disabled children without the necessary computer equipment and assistive technology to allow them to access remote education. There are disabled children having to rely upon charity grants to purchase the necessary computer equipment and broadband internet connection so that they can continue with their education from home.[ix] The Family Fund reported that tablets, computers, and laptops are top of the list for what parents need right now for disabled children during lockdown.7 Clearly, it is absolutely unacceptable for disabled children and their families to have to rely upon charity funding to have the necessary equipment needed to participate in remote education.

Disabled children may be using assistive technology and adapted equipment (i.e. keyboards and screens) when using computer equipment provided by schools. We are hearing that families are prevented from borrowing computer equipment from schools so that disabled children are able to continue learning at home.

It cannot be expected that families have all the assistive technology and computer equipment at home that will enable disabled children to continue with their learning.

Oak Academy remote learning offer

The Department for Education’s sponsored the Oak National Academy School and a BBC online platform consisting of over 160 lessons have been designed with neurotypical children in mind. The learning platform is not inclusive from the start, factoring in ­­the needs of children with SEND. For instance, online lessons do not include BSL interpretation or audio description for disabled children with sensory impairments.10 Furthermore, the online curricula are not differentiated for disabled children with special educational needs, as this parent states:

“[The] local authority should provide differentiated learning and also provide it further in advance, currently materials are uploaded in the morning giving me zero time to look through and work out what he can and cannot access…” (ALLFIE Education Professional Survey, April 2020)

The majority of parents are differentiating the curriculum themselves without any assistance being provided by the school or the online platform provider’s staff team. It is not simply a case of providing disabled children with course content which is clearly written for a younger age group as the adult-child interaction can often be of an inappropriate nature. Our survey findings are supported by similar concerns highlighted by the Special Needs Jungle website:

“For families of children with SEND, there was one big problem – there was nothing differentiated or specialist for them. The criticism has been that it should have been inclusive from the start, factoring in the needs of children with SEND as it was developed, rather than being bolted on at the end….”

The Oak National Academy has uploaded a SEND specialist curriculum which is aimed at special school children with profound learning difficulties which will not be suitable for every disabled child.

Furthermore, the Department for Education’s guidance on remote education does not provide comprehensive advice and support for how disabled pupils can participate online where they can.11

Remote education requires human support

Providing online learning is not simply about having the appropriate computer kit and software uploaded for learning. Disabled pupils often require personal/learning support assistance to structure their learning opportunities and keep their focus on tasks, among other hurdles.

“I have to sit with him the whole time he is learning to keep him on task. Rather than Google Classroom, some kind of face time with a [learning support assistant] or teacher would help, we need proper support to teach new concepts.” (ALLFIE Parents Survey, April 2020)

Disabled children may not always be able to use computer equipment because they do not have the physical ability to do so. We have heard of disabled children being unable to type and not being provided with any assistance to access the remote learning opportunities.

Similarly, disabled pupils will often require the curriculum to be differentiated to accommodate their learning styles and abilities, which requires expertise provided by specialist and classroom teachers and special education needs co-ordinators in conjunction with speech and language therapists, occupational therapists, and physiotherapists. Similarly, British Sign Language Interpreters, lip readers, and other communication specialists are also required to support the accessibility of curriculum content for disabled children of all abilities. Learning platform providers must be required to incorporate communication facilitation, it should not have to be provided by parents.

“The challenge for us is accessing online resources, lots of content isn’t captioned and there is very little in BSL. [We] tried using BBC Bitesize today and had [the] same problem with clips not being captioned which is frustrating… I am also a fluent BSL signer so can explain things if required.” (ALLFIE Parents Survey, April 2020)

Alternative to remote education

“Normal families can do home schooling with their children. Zac (15-year-old autistic child) can’t do anything remotely like a child of his age can do… It takes two teachers to keep him sat down at school and he has had behavioural problems since lockdown started.”12

Not all disabled pupils can continue with their learning online for a wide range of reasons. Indeed, 89% of ALLFIE’s respondents said no alternative provision has been arranged if online learning was not accessible for the disabled children. This parent says:

“My daughter is being emailed worksheets to complete. I would like them to send some variety, e.g. links to videos or games, not just worksheets.” (ALLFIE Parent Survey, April 2020)

We found the majority of schools either provided remote education or prepared worksheets. Schools have not provided personal support or advice for parents on creating practical activities that can be undertaken at home or whilst undertaking outdoor exercise to support their children’s learning. As such, disabled children that cannot access remote learning and paper worksheets have been denied state funded education for three months.

Social interactions and relationships

“My son is using technology more than ever. Unfortunately our old laptop and cheap computer is not helping with emotions.” (Parent Family Fund Survey, May 2020)

Education practitioners and parents have raised particular concern over disabled children’s risk of increased social isolation from their school peer groups. Non-disabled children tend to develop their own friendship groups, including WhatsApp and Facebook groups. Consequently, friendships are maintained and sustained throughout lockdown. However, this is not the case for disabled pupils and there is little attempt by the schools to provide support with maintaining relationships either with their mainstream or SEN unit peer groups. Apart from friendships, the majority of parents have reported the withdrawal of psychological and emotional support provided by psychologists, psychiatrists, and CAMHs at a time when it is most needed.

Parents are left without any support

The disruption of school routines has placed considerable pressure upon family life. Families are expected to get on with it with little-to-no expertise. Despite schools still having staff employed, many parents are left to educate their disabled children whilst taking care of other children and holding down paid jobs. Parents are acting as unpaid and unqualified teachers, learning and support assistants, and therapists which has resulted in greater social isolation and pressure.

Very concerned about young people and families not being supported in relation to emotional, social, and cognitive development in addition to being more at risk in relation to poverty. Further, the government has rescinded the need for LAs to fulfil EHCPs and simply asked them to make their best endeavour.” (Education Psychologist ALLFIE Survey, May 2020)

ALLFIE’s survey is supported by the Family Fund’s findings that have reported the withdrawal of expertise that parents need right now to address the anxieties and deterioration in health that disabled children are experiencing as a result of their school routines being withdrawn due to school closures.

Schools and local authorities can make alternative arrangements

ALLFIE is very concerned over the complacency adopted by some schools and local authorities since the Children and Families Act easements. Whilst we have heard a lot of schools and local authorities are not complying with their legal duties, there are exceptions as these two parents have said:

“Work is set online, but I am [in] almost daily contact with the Teacher of the Deaf via email to discuss any issues and to share information. We have a means of video contact with communication support staff for planned contact time using BSL. Work is set online and accessed daily via an app. Work is not equivalent to a full day in school but I feel it is an appropriate amount for the current situation… Fortunately we have not had any problem so far as my child has good literacy skills.” (ALLFIE Parent Survey, May 2020)

As and when. Very balanced and supportive. An hour or so a day, a few days a week and then extra if we want. Very much responding to our needs and capacity. Online eye gaze via Zoom and Skype from Speech and Language Therapist Same for physio. Mental health support via the Zoom IE, we meet up with the rest of the class.” (ALLFIE Parent Survey, May 2020)

What these few positive examples highlight is that SEND provision can be provided in an alternative manner by schools and local authorities so that disabled children can continue learning remotely. ALLFIE believe that schools can and must be legally required to do more to arrange the SEND provision for disabled children within their own homes.

Qualifications and assessments

Due to the closure of education institutions, the Government has cancelled GCSE and A Level examinations for all students expected to sit these exams at the end of the 2020-21 academic year. We understand that OFQUAL will work with examination boards to make arrangements to award GCSE and A Level grades based on teacher assessments of students’ performance in classroom-based assignments and mock examinations. Whilst ALLFIE would support continuous assessment, parents have raised concerns over the grading of their disabled children’s work where the school or college have systematically failed to put the necessary support in place.

We are concerned that disabled students will be placed at a greater disadvantage than their non-disabled peers as a result of the various examination and assessment arrangements being put in place by both OFQUAL and higher education institutions. We are still waiting for the publication of the examination arrangements for vocational courses that include on-the-job assessments of students and apprentices.

Conclusion

Our survey is highlighting the extent of ableism in our education system. Our respondents’ experiences are that the design of the learning platforms, the lessons, curriculum, and the learning styles employed are those most suited to the neurotypical student cohort. Consequently, too many disabled students who cannot access standard online learning opportunities with minimum adjustments are being denied their basic right to mainstream education. Parents are telling us that they are not getting any support or alternative provision that could help their children retain and develop their skills. Furthermore, our survey identified that many disabled children with EHCPs are no longer getting the level, quality, or quantity of special education provision, which has resulted in high levels of exclusion and isolation despite SEND staff remaining on the school payroll. Moreover, disabled students are telling us they have immense difficulty in accessing online courses, assessments, and examinations.

If local authorities and education institutions are not providing SEND provision, disability-related reasonable adjustments, or offering a suitable differentiated curriculum using a range of learning methods, then disabled pupils cannot engage in mainstream education alongside their non-disabled peers within either a home or an educational setting. ALLFIE’s work has revealed that the longer the period that disabled students are not participating in mainstream education in a meaningful manner, the wider the potential gap in educational and life changes and achievements between disabled and non-disabled people.

ALLFIE’s evidence so far is that the Coronavirus Act’s changes to SEND legislation will no doubt lead to greater segregation and exclusion of disabled students from mainstream education.

“For far too long, disabled people have been denied equal rights to mainstream education. No other group has been systematically excluded from mainstream education because of their personal characteristics, i.e., their impairment.” (ALLFIE Education Professional Survey, April 2020)

What do we want the Government to do?

Short term

Schools and colleges are reopening from 1st June with changes in the organisation of learning and classroom sizes. Given that education providers have kept their staff on the payroll, there is no reason why the Government and education providers cannot implement good practice as set out in the Covid-19 and UNCRPD guidance, including:

Post Covid-19: Long term

What the Covid-19 pandemic has highlighted is that the Government must take urgent steps to strengthen the legal framework that supports disabled students in participating in mainstream education both within mainstream educational settings and from home due to health and impairment-related issues.

ALLFIE’s inclusive education manifesto, which consists of six demands, would move us from the present situation to a fully inclusive education system, as recommended by UNCRPD’s Monitoring Committee. We believe disabled people have the right to:

As the UNCRPD’s Monitoring Committee has recommended, the Government should work with organisations of disabled people like ALLFIE to develop a fully inclusive education system. The Government must fulfil its Article 24 obligations around inclusive education by working with ALLFIE.

We would also welcome the opportunity to provide an oral submission.

For more information, please contact:

Simone Aspis      simone.aspis@allfie.org.uk

Michelle Daley    michelle.daley@allfie.org.uk

References

[i] United Nations. (2020). Convention on the Rights of Persons with Disabilities – Articles. Retrieved from https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/convention-on-the-rights-of-persons-with-disabilities-2.html

[ii] Equality Act. (2010). Retrieved from https://www.legislation.gov.uk/ukpga/2010/15/contents

[iii] The Sutton Trust. (2020). SOCIAL MOBILITY AND Covid-19: Implications of the Covid-19 crisis for educational inequality. Retrieved from https://www.suttontrust.com/wp-content/uploads/2020/04/Covid-19-and-Social-Mobility-1.pdf

[iv] Children and Families Act. (2014). Retrieved from http://www.legislation.gov.uk/ukpga/2014/6/contents/enacted

[v] Coronavirus Act. (2020). Retrieved from http://www.legislation.gov.uk/ukpga/2020/7/contents/enacted

[vi] United Nations. (2020). Covid-19 AND THE RIGHTS OF PERSONS WITH DISABILITIES: GUIDANCE. Retrieved from https://www.ohchr.org/Documents/Issues/Disability/Covid-19_and_The_Rights_of_Persons_with_Disabilities.pdf

[vii] Family Fund. (2020). Impact of Covid-19 Research: UK Findings. Retrieved from https://www.familyfund.org.uk/Handlers/Download.ashx?IDMF=0dcffffe-f803-41de-9a4a-ccc8fef282d4

[viii]Office for National Statistics. (2019). Exploring the UK’s digital divide. Retrieved from https://www.ons.gov.uk/peoplepopulationandcommunity/householdcharacteristics/homeinternetandsocialmediausage/articles/exploringtheuksdigitaldivide/2019-03-04#what-is-the-pattern-of-internet-usage-among-disabled-people

[ix] Department for Education. (2020). New major package to support online learning. Retrieved from https://www.gov.uk/government/news/new-major-package-to-support-online-learning

10 Special Needs Jungle. (2020). What’s wrong with Oak Academy’s specialist curriculum? https://www.specialneedsjungle.com/whats-wrong-oak-academy-specialist-curriculum/

11 Department for Education. (2020). Remote education practice for schools during coronavirus (COVID-19). Retrieved from https://www.gov.uk/guidance/remote-education-practice-for-schools-during-coronavirus-covid-19

12 Whittaker, A. (May 31, 2020). Parents describe ‘absolute nightmare’ of lockdown with special educational needs children. DerbyshireLive. Retrieved from https://www.derbytelegraph.co.uk/news/derby-news/parents-describe-absolute-nightmare-lockdown-4167640

On 30th April 2020 the UK Government announced temporary changes to the Children and Families Act 2014. This briefing explains how changes to law around Covid-19 effect Disabled people’s education and covers:

For more information about Covid-19 legislation effects on Disabled people, please see our previous briefings:
Coronavirus Act 2020 and Disabled Learners | April briefing
Coronavirus and Disabled People’s Education | March briefing

Revised UK legislation and guidance

  1. Children and Families Act 2014
  2. Coronavirus Act 2020
  3. The UK Government’s COVID-19 recovery strategy
  4. The Department for Education’s Sponsored Online Platform

1. Children and Families Act 2014

The revised Children and Families Act 2014 includes modifications to securing education, health and care provision and timescales to complete Education, Health and Care Plans:
Children and Families Act 2014: EHC plans modification notice
Coronavirus Act 2020 Modification of section 42 of Children and Families Act 2014 Notice 2020

Securing Education Health and Care Provision

Local authorities and Clinical Commissioning Groups are required to use ‘reasonable endeavours’ to secure the education, health and care provision set out in the individual’s education, health and care plan. The guidance includes an emphasis on local authorities to consider arranging provision in a ‘different manner’ in consultation with the child, young person and family. There is a list of examples of how SEND provision can be provided in a different manner, including having online teaching and therapy lessons and in-person support whilst the child or young person is not being educated within an educational setting such as a mainstream school or college.

The Children and Families Act modifies rather than disapplies section (42) for a fixed period of time from 1st May to 31st May 2020. These changes will be reviewed at the end of the month by the Secretary of State for Education, and extended if necessary.

Statutory timescales to complete the education, health and care assessment and plan

The statutory time scales for completing the education, health and care assessment and plan within 20 weeks has been suspended between May 1st to 26th September 2020. The child or young person’s assessment and plan should be completed as soon as ‘reasonably practicable’ or in line with ‘any timescales required’ in the regulations. Similarly, these changes will be reviewed at the end of the month by the Secretary of State for Education, and extended if necessary.

It is important to note that the Children and Families Act’s provisions have been modified rather than disapplied. This means that local authorities still have a duty to assess and produce an education, health and care plan and where required to arrange special education needs and health care provision in a different manner if necessary.

2. Coronavirus Act 2020

For more information about the Coronavirus Act and Disabled people’s education see our briefing: Coronavirus Act 2020 and Disabled Learners

The emergency Coronavirus Act 2020 will be reviewed in September, so it is vital that you keep letting us know whether local authorities and education providers are doing their best to uphold Disabled students’ rights to mainstream education.

Our Covid19 survey is still open for submissions from students, parents and education professionals, or you can email ALLFIE’s Campaigns and Policy Coordinator

3. The UK Government’s COVID-19 recovery strategy

On May 11th, the Government published its Covid-19 recovery strategy: Our Plan to Rebuild, including its steps on how the economy and our ordinary lives are to be returned to whilst managing the risk of Covid-19.

You may be concerned whether the Government’s plans to reopen schools, colleges and universities are safe and how they will reassert their responsibility to provide learning opportunities for all pupils from 1st June.

The Government says:

The rate of infection remains too high to allow the reopening of schools for all pupils yet. However, it is important that vulnerable children (including children in need, those with an Education, Health and Care plan and those assessed as otherwise vulnerable by education providers or local authorities) and the children of critical workers are able to attend school, as is currently permitted.

Schools should prepare to begin to open for more children from 1 June. The Government expects children to be able to return to early years settings, and for Reception, Year 1 and Year 6 to be back in school in smaller sizes, from this point. This aims to ensure that the youngest children, and those preparing for the transition to secondary school, have maximum time with their teachers. Secondary schools and further education colleges should also prepare to begin some face to face contact with Year 10 and 12 pupils who have key exams next year, in support of their continued remote, home learning. The Government’s ambition is for all primary school children to return to school before the summer for a month if feasible, though this will be kept under review. The Department of Education will engage closely with schools and early years providers to develop further detail and guidance on how schools should facilitate this.

This plan does not seem to include guidance for when higher education institutions can start to open up safely for students. As soon as we know these details, we will upload guidance published by the Government.

The Government have also included an updated statement around protecting the most “clinically vulnerable” people. There is nothing included to specify how disabled children and adults will continue their education for the foreseeable future.

4. The Department for Education’s Sponsored Online Platform

To ensure that schools and pupils are able to continue to provide a structured curriculum, the Department for Education has commissioned the Oak Academy School to develop online lessons that teachers and parents can use to help their children’s learning during lockdown. When ALLFIE went onto the website, we were surprised to find that SEND factors were not considered. We could not find any of the following for Disabled pupils:

Parents have complained about the lack of inclusivity in the on-line curriculum provided by Oak Academy and expressed concern to ALLFIE. We are disappointed that, in a hurried response, the Oak Academy designed and uploaded a specialist and segregated curriculum aimed at children with more profound learning difficulties.

For more information, please read SEN Jungle’s post “What’s Wrong With Oak Academy’s Specialist Curriculum?”

What action ALLFIE is taking: an update on our work

  1. ALLFIE Survey and Select Committee Submissions
  2. Measuring Impact to changes in law
  3. Meeting with Vicky Ford, Parliamentary Under-Secretary of State for Children and Families
  4. Meeting with the Department for Education

1. ALLFIE Survey and Select Committee Submissions

We want to thank everyone who completed our Covid-19 survey – this has given us great material to submit to the Education Select Committee, which was our main ask.

We are planning to send a written submission to the Education Select Committee’s Inquiry into the Government’s Covid-19 policies on school closures and their impact upon children and young people’s education. We will ensure that the experiences of Disabled school, college and university students and their families will be heard by the Education Select Committee.

Because we received so many great responses, we have also responded to the Women and Equalities Select Committee’s Inquiry into the impact of the Government’s Covid-19 policies upon groups of people protected under the Equality Act 2010.

2. Measuring Impact to changes in law

Now that the Children and Families Act changes are in place, we will begin to see whether local authorities, schools and colleges will work together to ensure that Disabled children and young people are able to continue with their education at home. For Disabled students requiring reasonable adjustments there are no changes in law, but we want to continue to hear from you to find out what is going on.

Please keep an eye on our website for updated information. Our Covid-19 survey is still open for submissions or you can email ALLFIE’s Campaigns and Policy Coordinator.

3. Meeting with Vicky Ford, Parliamentary Under-Secretary of State for Children and Families

Thanks to all the support from our National Day of Action for inclusive education, which included handing in a 108,000 signature petition to both 10 Downing Street and the Department for Education, we had an invitation to meet with Vicky Ford MP, the minister responsible for disabled children and their families. We want to use this opportunity to:

4. Meeting with the Department for Education

Before the Covid-19 outbreak, we were due to meet the Department for Education to discuss our submission to the SEND review, together with how the Government is to develop a fully inclusive education system through implementing the UNCRPD Monitoring Committee’s observations and recommendations. We are still aiming for this meeting to take place at a later date.


Simone Aspis
ALLFIE Campaigns and Policy Coordinator

In September 2019 the Government announced a major review into the Children and Families Act – the legal framework for children and young people with special educational needs. This was in response to the various investigations into the systematic failures of the implementation of people with learning difficulties.

This review has been on-going without a publication date because of the Covid-19 pandemic. We will keep you informed of any updates.

Alliance for Inclusive Education’s submission to the Government’s SEND Review

April 2020

Alliance for Inclusive Education (ALLFIE) is the only national organisation led by disabled people working on educational issues and, in particular, working to promote the rights of disabled students (including those with SEND) to be included in mainstream education. Inclusive education benefits everyone; it is only through disabled and non-disabled people playing, learning, working, growing up together, and establishing relationships that we will achieve an inclusive society that welcomes all.

SEND Language

ALLFIE uses the term ‘disabled children and young people’ because many of them will fall under the definition of disabled persons in the Equality Act 2010.[1]

Special Schools

‘Special school’ is an umbrella term used to include alternative provision, pupil referral units and secure schools where the majority of their pupil intake are those with either diagnosed or undiagnosed disabilities.

SEND Review

ALLFIE welcomes the SEND review of the actual operation of the Children and Families Act 2014 (CFA). Our submission will use the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) Independent Monitoring Committee’s concluding observations and recommendations to review the progress of SEND reforms, including the correct balance between inclusive mainstream and specialist places, better assistance for parents in making decisions around support for their child, making sure support in different local areas is consistent, joining up health, care, and education services across the country, and ensuring that public money is spent in a sustainable manner, placing a premium on securing high quality outcomes for disabled children and young people.

The UNCRPD Monitoring Committee expressed concern at:

UNCRPD Monitoring Committee’s first observation is the increasing number of children with disabilities in segregated education environments

The Department for Education datasets consist of numbers and percentages of disabled pupils with and without an Education, Health and Care Plan (EHCP) being educated in different educational settings. Between 2010 and 2018, the percentage of children in England with an EHCP attending maintained special schools increased from 38.2 per cent to 44.8 per cent, while those attending state-funded ‘mainstream’ secondary schools declined from 28.8 per cent to 20.9 per cent.[2] These figures do not include disabled pupils in home education, residential special schools, and specialist psychiatric inpatient units. Additionally, the numbers do not include disabled children placed in segregated settings whilst being educated in mainstream schools. Thus, the statistics severely underestimate the true extent of segregated education experienced by disabled pupils within the UK.

The Department for Education’s statistics reported the following: pupils with SEN support had the highest permanent exclusion rate and were almost seven times more likely to receive a permanent exclusion than pupils with no SEN. Moreover, pupils with an EHCP had the highest fixed period exclusion rate and were almost six times more likely to receive a fixed period exclusion than pupils with no SEN. Children with SEN accounted for almost half of all permanent and fixed period exclusions.2

UNCRPD Monitoring Committee’s second observation is the persistence of a dual education system that segregates children with disabilities in special schools, including segregation based on parental choice.

The CFA’s presumption of mainstream education should not exclude any group of disabled children based on their impairments or health conditions. However, the Academies Act states that schools must admit pupils from a broad rather than a full range of abilities.[3] As a result, the Academies Act has encouraged disability discrimination in schools as part of the SEND reforms; this parent explains:

“The CFA supports parents’ right to choose a mainstream education but it doesn’t say anything about what to do when mainstream schools show little or no interest in educating our children. Is it any wonder, then, that the number of children with severe learning disability[ies] educated in special schools has increased?” (ALLFIE Case Study 2018)

With more maintained nursery schools shutting down or having reduced funding, councils are reporting that head teachers are reducing their intake of disabled pupils[1] or closing resource bases.

“The majority of headteachers said that, if they did manage to stay open, this would only be by accepting fewer children with SEND, or significantly reducing the support available for these children.”[4]

“Miles was settled into a good mainstream school with a well-resourced impaired hearing unit. After the school’s unit closed down as a result of cuts, the parents had to move him three more times from one school to another before settling for a residential special school for deaf children.[5]

The Local Government Association has warned the government that:

“We are concerned that if councils do not receive sufficient funding to cover [the high] cost [of] SEND, they will not have the resources to allocate extra funds to highly inclusive schools above the national SEN budget. The concern is that unless funding reflects needs, mainstream schools may be reluctant to accept or keep pupils with SEND because they cannot afford to subsidise the provision from their own budgets.”[6]

Despite the Schools Admissions Code being updated as a result of the SEND reforms prohibiting state-funded schools from discriminating on the grounds of disability, there has been a steady decline of disabled pupils placed in all forms of mainstream schools.[7]

The SEND reforms are not only adversely affected by individual school autonomy but also by local authorities’ strategic role in championing inclusive education practice. A local area approach allows authorities to use their knowledge about disabled pupils to plan, coordinate, fund, and monitor school admissions and their SEND provision in their own educational settings. As a result, disabled pupils do not receive specialist support from experienced practitioners employed by the local authority for mainstream schools[8] (Save Our Schools Campaign conference, 2018).

“I lost the local authority’s learning support assistant who specialises in working with pupils with dyslexia.”

Cuts are not limited to SEN; health and social care provision is also being heavily cut by budgetary reforms. Mainstream Schools are unable to access mental health services, physiotherapy, speech and language therapy, and occupational therapy. For many disabled pupils requiring coordinated education, health and care services, parents have a fight on their hands to secure such provision within mainstream educational settings, as this parent has experienced with his son.

“Around forty mainstream schools were contacted about a place for Finn and all except one refused. The local authority did not support our preference for Finn to attend a mainstream school, claiming it wasn’t suitable and that children like Finn do better in a special school.”[9]

Inadequate funding for coordinated education, health, and care services in local areas has meant that local authorities are being forced into commissioning expensive independent special school placements.5 Additionally, 6,000 disabled pupils/students are being educated in 334 residential special schools and colleges in the state, non-maintained, and independent sectors; these residential placements cost an estimated £500m per annum, or £88.333 per pupil.5

“Families were often forced to make difficult choices, in some instances be apart so that they could receive all the support they needed.”

Individual councils such as Hertfordshire, Swindon, and Waltham Forest are paying over £100,000 per pupil attending an independent special school placement.[2] We have been told by parents that an independent residential special school placement can cost up to £250,000 per pupil placement.5 As a result of the SEND reforms, local authorities are no longer adopting a proactive role, but are instead reacting on a case-by-case basis where individual disabled children’s needs cannot be met locally and are therefore required by SEND to pay for more expensive segregated education provision.

The priority of education funding is driving children into segregated education; during 2017, the Government created 1,600 new special free school places across 19 local authorities to deal with the predicted growth of disabled pupils. Bradford and Newham are planning to create more special school placements whilst reducing the availability of mainstream school provision.[10]

Currently, a dual education system is creating bias towards the funding of segregated education whilst reducing resources for mainstream education. In 2019, the National Audit Office observed

“Funding pressures limiting mainstream schools’ capacity to support pupils with high needs effectively… Pressures – such as incentives for mainstream schools to be less inclusive, increased demand for special school places.”[11]

The majority of mainstream and segregated education provision has reported insufficient funding to fully cover the cost of SEND provision required for all their disabled students. On a broader note, the National Audit Office also concluded that a dual education system is not sustainable as all types of schools are failing to secure sufficient funding to provide high quality SEND provision for their pupils.

The Department for Education’s desire to achieve the correct balance between state-funded inclusive mainstream and specialist places cannot be achieved. Disabled pupils/students do not consistently receive high quality support in either mainstream or segregated education settings and therefore business as usual is not affordable. The National Audit Office concludes that having a dual education system is no longer sustainable. The only way forward is to heavily financially invest in the UK mainstream education system.

UNCRPD Monitoring Committee’s third observation is the fact that the education system is not equipped to respond to the requirements for high-quality inclusive education, particularly reports of school authorities refusing to enrol a student with disabilities who is deemed to be “disruptive to other classmates”

UNCRPD Article 24 and Comment 4 sets out unequivocally that every disabled pupil/student has a right to mainstream education. UNCRPD Article 24 requires the Government to have legal, financial, management, and monitoring systems in place that uphold disabled students’ right to mainstream education.

The CFA is a vital piece of legislation in that, for the first time, there was a presumption of mainstream education for SEN children and young people. Their right to education, health, and social care provision in various school, educational, and training settings were brought together in one statute. However, in practice, the Act has often been ineffective in achieving the stated aim of promoting the presumption of mainstream education for all disabled students; this is because the Act fails to provide a strong framework of inclusive principles within the meaning of the presumption of mainstream education which can also be used to effectively guide education legislation. Currently, there is no legal definition on what constitutes the presumption of mainstream education. Furthermore, the Act allows for students to be placed in segregated educational provision against the wishes of the child and their family.

Disabled students and their parents can lose their right to mainstream education if they request an EHCP. Clause 35 of the CFA states that local authorities are not required to place a child in a mainstream school if it is incompatible with the wishes of the child’s parent or the young person, or the “efficient education of other pupils”. A case worker for the Communities Empowerment Network explains that having an EHCP would mean that if this child started school today, he would be forced down the segregated education route:

“S is an increasingly rare breed – as a young man with an EHCP requiring a flexible and bespoke approach to his education you would expect now to find him in the special school enclosure as most mainstream schools and academies are shutting their gates at admission stage or excluding students with significant needs once they are in school, often using unlawful and underhand routes.”9

Clause 35 of the CFA allows local authorities to place disabled students with an EHCP in a special school if no reasonable steps can be taken to remove their incompatibility with the “efficient education of other pupils”. Education caseworkers for various organisations have reported a steady increase in disabled pupils being rejected by mainstream schools and declining support from local authorities. Too often this test is a theoretical one based on prejudice, as illustrated by the parents of two disabled children with significant impairments in separate London boroughs:

“The Council is not catering to all children; for example, there are currently no options for children with severe learning disabilities in mainstream secondary schools in the borough.” (ALLFIE case study 2018)

The “inefficient education of other children” caveat allows the same disabled children to be treated differently by different schools and local authorities and is informed, in ALLFIE’s opinion, by prejudice and is a source of social injustice.

“A parent of a disabled son found that inclusion in a mainstream school was possible within the borough the family was living in but not the one they were moving to.”9

The Joint Committee on Human Rights (JCHR) highlighted the concerns they had when the Inclusive Schooling guidance accompanying the Special Educational Needs and Disability Act 2001 and the Education Act 1996 was not replaced with any specific guidance under the CFA, which would have set out the principles of inclusive education and what is expected from them in terms of taking reasonable steps to remove the incompatibility with the “efficient education of others” for local authorities and schools. This point supports ALLFIE’s argument that, without guidance, it will be for individual local authorities, schools and Special Educational Needs & Disability Tribunals to decide for themselves on a case-by-case basis whether the child will be allowed to be educated in mainstream schools. The JCHR expressed the view that the uncertainty around the implementation of the “efficient education” clause should be removed to achieve compliance with Article 24 of the UNCRPD.

A key message from the UNCRPD’s Monitoring Committee is that inclusion is not simply about disabled pupils/students’ attendance at a mainstream school or further education college; their guidance in Comment 4 clearly specifies that segregation occurs when disabled pupils/students’ education is provided in separate environments, such as SEN units and segregated courses designed or used to respond to particular or various impairments, in isolation from their non-disabled peers whilst enrolled at a mainstream school or college. Disappointingly, the CFA does not comply with Article 24 standards because the presumption of mainstream education only covers disabled pupils/students’ right to get through the door of a mainstream school or college.

Clause 35 of the CFA sets out the duty for schools to arrange SEN provision in a manner that will promote the child’s engagement in mainstream activities such as lessons. However, schools can rely on the exemptions of Clause 35 to segregate disabled children and students as the presumption of mainstream education clause does not entitle them to anything, as this parent explains:

“The removal of children from subjects is a bespoke package that the school have for children they do not think will pass GCSE. These assessments are all done in the first term of year 7 and are never done again. This option is designed for the SEN children of the school, none of whom get any reasonable adjustment support. My son was taken to a classroom they called learning support…”9

Segregation is endemic in the further education sector, as we found from freedom of information requests made to London further education colleges in 2016, two years after the implementation of the CFA. The overwhelming majority of disabled students with learning difficulties were placed on preparation for independent living and employment courses.

The failing of having inclusive education principles set out in the presumption of mainstream education has meant nothing more than expecting disabled students to fit into the education structures designed both by and for non-disabled people.

In the Education Act 2002, Section 52(1) allows head teachers to exclude a pupil due to a single serious breach or persistent breaches of the school’s behaviour policy that would seriously harm the education or welfare of the pupil or others in the school. Many school behaviour policies take a zero-tolerance approach, with children expected to behave in a prescribed manner in an environment which does not cater for disabled children. For example, one couple claimed that the school discriminated against their son Hayden by failing to make disability-related reasonable adjustments under the Equality Act 2010:

“His breaches of the rules seem fairly minor but there was an accumulative effect – wearing socks that were the wrong colour, eating food in an area of the school where it was banned and ‘gross defiance’ against staff… In the end he was excluded seven times in total, on the final occasion for five days…. After a two-day hearing, a judgment issued last month criticised the school for applying its behaviour policy rigidly and failing to make reasonable adjustments for Hayden because of his disability.”[12]

The presumption of mainstream education clause in the CFA does not sufficiently protect disabled students’ right to mainstream education. Whilst withdrawing the Inclusive Schooling Guidance and the “incompatibility of efficient education of other pupils” has undermined the practical implementation of the presumption of mainstream education in the CFA, other educational legislative changes and policies cannot be ignored. Some examples are:

Whilst the SEND review is centred around the SEND reforms, this cannot be done without examining how mainstream education legislation and policies are undermining the core principle of the presumption of mainstream education under CFA Clause 35 for disabled students.

The greatest source of social injustice is that disabled children do not have an unqualified right to mainstream education. Disabled students are the only group of people who can be segregated and excluded because of their “protected” characteristic, as defined by the Equality Act 2010, which UNCRPD’s Monitoring Committee said is a breach of UNCRPD Article 24 standards.

The Department for Education wants to better help parents to make decisions about the kind of support their children require when tied to a specific type of schooling and improve coordinated education, health, and care services; parents wanting such services for their children will risk losing their right to a mainstream school placement whilst engaging with the EHCP system. This is because local authorities can place disabled pupils into segregated education if specific conditions are met. Parents are often forced to weigh up a mainstream school’s offering and the education, health, and care support available in special schools.

UNCRPD Monitoring Committee’s fourth observation is the fact that the education and training of teachers in inclusion competences does not reflect the requirements of inclusive education.

In the UK, there is no requirement for school leaders (i.e. governors and head teachers, SENCO) or teaching staff to have undergone any specific inclusive education training or have prior experience of working in inclusive educational and childcare settings as part of the NQHT, PGCSE Qualified Teacher Status (QTS), and other qualifications. School trainees rated SEN training as one of the poorest aspects of their courses, as this trainee teacher reported:

“The thing that has let me down most with the training was not knowing enough about intervention strategies and dealing with SEN. We had three major sessions at college but it wasn’t practical enough in helping you deal with six SEN children with very different needs in a class of 29 with very little TA support!”[13]

What was shocking is that some trainee teachers did not expect to be teaching disabled pupils in mainstream education settings.

“One afternoon per week at a special needs school; excessive as most had no intention of teaching SEN.” (SCITT School-centred Initial Teacher Training], postgraduate)[3].

With a shrinking qualified workforce, there are insufficient resources to develop inclusive educational practices. Approximately three quarters of SENCOs stated that they do not have enough time to ensure that pupils needing SEN or EHCP-related support are able to access the provisions that they need, or that their workload requires working beyond contractual hours. As a result, learning support assistants, teaching assistants, and other support staff are increasingly being expected to undertake tasks such as curricula, lesson planning, moment-to-moment teaching, and learning decisions that should be provided by qualified teachers.[14]

Many of the recent SEND resources are impairment-specific and include suggested interventions underpinned by the medical model of disability, reinforcing the view that children cannot fit into mainstream educational settings. This is at a time when there has been a steady decline in up-to-date resources around the promotion of inclusive education. The recent SEND commissioned resources have not updated resources such as the Implementing Reasonable Adjustments in Schools pack.[15]

The Department for Education wants to align incentives and accountability for schools, colleges, and local authorities to make sure they provide the best possible support for children and young people with SEND. Only the right people with the right kind of training and experience can provide the best possible support for their pupils. Schools are relying upon teaching and learning support assistants, who are performing tasks that ought to be done by qualified practitioners such as speech and language therapists, occupational therapists, physiotherapists, and qualified teachers. Further, teachers can only deliver the best possible support in mainstream educational settings if they are provided with inclusive education training.

The incentives and accountability of schools and colleges must centre on the quality of their inclusive education practice against appropriate measures and indicators that promote inclusion. The Department for Education performance indicators must therefore focus on inclusivity instead of academic attainments.

What needs to be done?

Whilst the UNCRPD’s Monitoring Committee was highly critical of the Government’s SEND reforms, they nevertheless provided recommendations that should be implemented to ensure full compliance with securing disabled people’s human right to inclusive education, as outlined in Article 24, Comment 4 requirements. Indeed, the UNCRPD’s Monitoring Committee made several strong recommendations on what the SEND Review could start to implement.

“Provide sufficient, relevant data on the number of students both in inclusive and segregated education, disaggregated by impairment, age, sex and ethnic background, and on the outcome of the education, reflecting the capabilities of the students.”[16]

ALLFIE recommends that the Government commissions independent qualitative research into the drivers behind the increasing rates and range of segregated education provision and the impact it has upon disabled student’s academic, emotional, and social outcomes. The aim is for the Government to have a full understanding that parental choice is meaningless given that there is no alternative, but also to identify the strategic changes required to have a fully inclusive education system that works for all.

ALLFIE’s inclusive education manifesto consisting of six demands would move us from the present situation to a fully inclusive education system, as recommended by UNCRPD’s Monitoring Committee. We believe disabled people have the right to:

For a full copy of our manifesto, click here.

As the UNCRPD Monitoring Committee has recommended, the Government should work with organisations of disabled people like ALLFIE to develop a fully inclusive education system. We would like to work with the Government to fulfil its Article 24 obligations around inclusive education.

For more information, contact: simone.aspis@allfie.org.uk 

Footnotes

[2] Staufenberg J. (2017). “Private Special School Places Cost £480 million per year”. https://schoolsweek.co.uk/private-special-school-places-cost-480-million-per-year/

[3] National College For Teaching and Leadership.(2014).”Newly Qualified Teachers Annual Survey”

References

[1] Equality Act. (2010). Retrieved from https://www.legislation.gov.uk/ukpga/2010/15/contents

[2] Department for Education. (2018). Special educational needs in England: January 2018. Retrieved from https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/729208/SEN_2018_Text.pdf

[3] Academies Act. (2010). Retrieved from http://www.legislation.gov.uk/ukpga/2010/32/contents

[4] London Councils. (2019). Financial situation. Retrieved from https://www.londoncouncils.gov.uk/our-key-themes/children-and-young-people/education-and-school-places/hidden-value-report-exploring-2

[5] The Alliance for Inclusive Education. (2017). Submission to the Lenehan Review of Residential Special Schools and Colleges. Retrieved from https://pedantic-shannon.91-238-163-161.plesk.page/news/briefings/submission-lenehan-review-residential-special-schools-colleges/

[6] Local Government Association. (2017). Local Government Association response to the Department for Education’s stage two consultation on high needs funding formula and other reforms. Retrieved from https://www.local.gov.uk/sites/default/files/documents/Stage%202%20LGA%20High%20Needs%20repsonse%20FINAL.pdf

[7] Hutchings, M. (2015). The impact of accountability measures on children and young people. London, England: National Education Union. Retrieved from https://www.teachers.org.uk/files/exam-factories.pdf

[8] Send Gateway. (2018). SEN Policy Research Forum paper. Retrieved from https://www.sendgateway.org.uk/resources.sen-policy-research-forum-paper.html

[9] The Alliance for Inclusive Education. (2018). Submission to the Education Select Committee Special Educational Needs and Disabilities Inquiry. Retrieved from https://pedantic-shannon.91-238-163-161.plesk.page/news/briefings/submission-education-select-committee-special-educational-needs-disabilities-inquiry-june-14-2018/

[10] Department for Education. (2017). Applications open to create 1,600 new special free school places. Retrieved from https://www.gov.uk/government/news/applications-open-to-create-1600-new-special-free-school-places

[11] National Audit Office. (2019). Support for pupils with special educational needs and disabilities in England. Retrieved from https://www.nao.org.uk/wp-content/uploads/2019/09/Support-for-pupils-with-special-education-needs.pdf

[12] Weale, S. (2018, March 20). ‘It was heartbreaking’: Family wins tribunal after special needs pupil excluded. The Guardian. Retrieved from https://www.theguardian.com/education/2018/mar/20/family-wins-tribunal-special-needs

[13] National College for Teaching and Leadership (2014) Newly Qualified Teachers: Annual Survey 2014 Research report https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/430783/Newly-Qualified-Teachers-Annual-Survey_2014.pdf

[14] UCL. (2017). Education of secondary pupils with special needs too dependent on teaching assistants. Retrieved from https://www.ucl.ac.uk/ioe/news/2017/jun/education-secondary-pupils-special-needs-too-dependent-teaching-assistants

[15] World of Inclusion. (2014). The Reasonable Adjustment Project. Retrieved from http://worldofinclusion.com/res/rap/RAP_management.doc

[16] The Alliance for Inclusive Education. (2017). November 2017 Briefing: The UN. Retrieved from https://pedantic-shannon.91-238-163-161.plesk.page/news/briefing/november-briefing/

You can listen online below, or if you want to download the audio files, right click each article and choose “Save Link As”.

Inclusion Now 55 Spring 2020

SEND funding crisis, international inclusive practice, ALLFIE’s national Day of Action and more.

Welcome to the 55th edition of Inclusion Now. Audio and text versions are in the articles below or you can read it in magazine format on Issuu (not screenreader friendly).

To receive three issues of Inclusion Now a year on publication date, you can subscribe here. Subscribing supports our work and helps us plan for the future.

Inclusion Now is produced in collaboration with World of Inclusion and Inclusive Solutions

It is a great pleasure to write my first editorial for Inclusion Now magazine – the voice of inclusive education in the UK.

This edition shares welcome and thought provoking messages from Disabled young people, practitioners, researchers and disabled leaders, all championing inclusive education.

The RIP:STARS are not shy when it comes to speaking up for change for disabled children and young people. They discuss their contribution to the Commons Education Select Committee SEND Inquiry and how they demanded an end to inequality in human rights and “social injustice” for disabled children and young people at their evidence session in Parliament.

We hear all the news from ALLFIE’s national Day of Action for inclusive education, which hosted three events in Westminster in January – including delivering a 108,000 signature petition to Downing Street and launching the long-awaited Accessibility Plans report. Student Martine Harding attended all three events and reports back, page 10, while Armineh Soorenian shares report findings, page 12.

College teacher Hilra Vinha shares her personal account of promoting inclusion in further education work on page 14. Nic Crosby’s insightful article, page 8, highlights the important role health plays in supporting Disabled children and young people’s access to education and classroom inclusion, through provisions such as Personal Health Budgets.

On an international note, Richard Reiser gives an insight into how Malta’s education system is delivered for disabled children and young people, and the approach taken to resource and deliver support.

All of which highlights why inclusive education must be regarded as a human right for all disabled people, and the importance of solidarity.

Michelle Daley, ALLFIE Director

Supported by

ALLFIE’s campaign for Inclusive Education as a human right is backed by funders and donors who reject the systemic segregation of Disabled people from society.